This presentation is a summary of your feedback from the consultation event for the Bristol CCG cancer survivorship project in 2015.
Over 60 people attended Bristol CCG’s first cancer survivorship event on 12 February, which is designed to help shape the future of services. The afternoon, which was held at Armada House in central Bristol, began with a brief introduction from Alison Moon, Director of Transformation and Quality and Dr Martin Jones, Chair of Bristol CCG.
They outlined that improving cancer outcomes is a key priority for the CCG and is one of the 11 key delivery themes, as well as one of five key projects being undertaken by the cancer steering group.
This was a proactive event arranged by the CCG to gather extensive views from stakeholders, establishing what factors are important to people with experience of living with cancer.
The event saw people come together from organisations including Penny Brohn Cancer Care, the Orchard Foundation, Gloucestershire Village and Community Agents, North Bristol Trust and University Hospital Bristol as well as people who have experienced or are experiencing the current survivorship pathway.
The current pathway was discussed with the group, who agreed there are many assumptions made.
Some examples include; incurable cancer inevitably leads to pain, suffering and rapid decline, there is nothing that people can do themselves that will make a difference to their quality of life and that hospitals are the best place to manage all people with cancer.
These assumptions often mean patients’ needs are left unmet and they also feel disempowered, while hospitals struggle to deal with increased numbers.
It was revealed by Dr Catherine Zollman, Cancer Clinical Lead, that the new pathway should ensure that people’s needs are assessed holistically and they are offered person-centred solutions and support. The pathway will also encourage self-management and help people live healthier, happier and longer lives.
Catherine Zollman presented a draft proposed pathway that had the following key principles:
- Pace set by patient
- Understanding patient preferences
- Improved communication
- Plan for survivorship from the start
- Development of patient resilience
- Supported and empowered to self-manage
- Access to mental and emotional support
- Health as part of a wider web of support
At the end of the afternoon Dr Catherine Zollman revealed the timescale until the launch of the new pathway.
Based on feedback from the event and further discussion with people unable to attend, the strategy and business case will be completed and submitted to the CCG Governing Body by July 2015.
A decision will be made on priority areas to be commissioned in March 2016 for the pathway to be implemented in 2016/17.
You gave us your views of how services should be designed to best meet the needs of people and their families/carers who are living with and beyond cancer:
Cancer survivorship pathway: your feedback
Summary of feedback from the consultation event for the Bristol CCG cancer survivorship project on 12 February 2015.
It’s not too late if you want to help shape the future of cancer survivorship services. You can email your thoughts to firstname.lastname@example.org or join in the debate on Twitter by using #BCCGconsultoncancer.
Here is a slideshow of tweets from the event and those that use the #BCCGconsultoncancer hashtag: